My recovery from CFS due to osteonecrosis in my jaw
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For virtually my entire life I've always been really healthy, hardly ever taken any time off sick. In December 2005, age 22, I knew something was wrong with me, although I really couldn't put my finger on it. My energy levels seemed drained, for a few odd days in December I slept for virtually the entire day which was most unlike me. This continued for a month or two, until in January my health just fell off a cliff literally over night. It was pretty much exactly like I had flu, but instead of the symptoms being over in a few days, they went on for weeks and months. I had headaches, muscles ached, felt extremely drained of energy. I developed a permanent sore throat. My sleeping also became extremely disturbed, in fact it got so bad, I totally lost control of it and basically had no day or night. I'd just wake up and sleep randomly.
For virtually 2 years about the only time I ever left the house was to go see the doctor. They performed all sorts of tests on me, mostly blood tests which showed virtually nothing. I had a slight anomaly on my liver function test, which they debated whether it was outside of the normal range for someone of my age, but came to no real conclusions and eventually diganosed me with CFS. Now you gotta understand, I already knew about CFS before I had this diagnosis, and it was a death sentence for me, because virtually all of my immediate family have had it. My mum has basically had it my entire life, and my sister had it for a good 5 years. Losing 5 years of my life into a giant black hole, or worse, staying like this forever, was just an unimaginable nightmare for me. Coming home from school when i was 15/16 and basically everyone in my house being asleep because they were all ill, wasn't especially fun.
I played the waiting game for, nearly 2 years. Put my health into the hands of the doctors, and they basically had no answers. None at all. So I realised the only person that was going to fix me, was myself, so I set upon a quest to find out what was wrong with me. I was really driven, and I had virtually unlimited time to work on this problem.
Anway to cut a long story short, I figured out I had osteonecrosis in my jaw. It turns out that things we are told are safe, are not safe. Root canal teeth are not safe, they are all toxic, very toxic to the body. When I had mine pulled, the dentist found that all the bone around the tooth had basically died and turned to mush, even though other dentists had x-rayed me and told me everything looked really good. You have to understand I had no pain or swelling or discomfort from this tooth. I had no pus etc etc, it all looked fine. I tried hard to convince myself that my front tooth wasn't toxic and root canal teeth aren't bad, but the more literature on the subject I read, the more I realised they do and can cause chronic disease in some people. When my health got so bad, I snapped and just had to try it. Looking back it was the right decision.
That wasn't the end of my health nightmare though, I had 2 other large infections in my jaw from horizontally impacted wisdom teeth. I had the teeth removed, it looked like it healed up fine. In reality I had holes in my jaw which were invisible to x-ray (they showed up on ultra sound). Again I had x-rays and they told me everything was fine. But the cavitat ultra sound I had, showed up a massive area of necrosis in my jaw. Anyway there are very few people in the world that can do this kind of surgery, because mainstream healthcare and dentistry basically refuses to admit the problem exists, even though probably a lot of people have it. If you've ever had a tooth extracted, you could have it. In fact according to the literature if you've had wisdom teeth extracted there's something like an 80% chance you have this problem. Everything looks fine on x-ray so who cares right? I found the one dentist in the UK that can do this kind of surgery, and when he opened it up, the necrosis I had was really extensive, and sadly for me extended under living teeth which I had to lose. It also smelt terrible when they opened it up. All the other dentists with their x-rays etc etc had missed it, and the doctors had failed with their blood tests.
It's been less than a month since I had the surgery, but already I feel a lot better. I have a lot more energy than i had a month ago and generally am feeling great. The pain I was getting in my lymph nodes in my neck has nearly gone. I still have quite a lot of healing to do from the surgery but I am getting there :) Really excited about getting my life back and having a real chance at a future.
Anyway, that's my story, I've also documented it in detail on my website, along with my ultra sound scans I had, my x-rays, and a few pictures of the surgery I had. I hope that the information on my website, might be able to help others.
This recovery story is in categories: Chronic Fatigue Syndrome, ME (myalgic encephalitis), Osteonecrosis