How I recovered from Chronic Fatigue Syndrome

How I got ill

As with many people, it took me quite some time before I even realised I had Chronic Fatigue Syndrome (CFS). I'd heard of ME, because a friend of my mum's had it for many years, but knew nothing about it. Although ignorance is not bliss, I don't know what I would have done if I'd known it would take 5 years to recover.

I returned home from travelling in India and almost immediately came down with a nasty virus. After a few weeks I went to the doctor, who said to come back if it didn’t clear up after two more weeks. I was a regular visitor to my local surgery over the next few months, and my doctor muttered something about post viral fatigue syndrome, without offering any explanation. Instead he sent me for more tests at the London School of Tropical medicine. According to every test I was a perfectly fit twenty five year old, but I felt awful. I had a permanent feeling of having flu. I had no energy, a sore throat, and huge circles under my eyes from the difficult, empty sleep which seemed to leave me feeling even more exhausted than when I went to bed.

After a year, I was referred to Professor Pinching at St Barts who confirmed that I had ME, also known as Chronic Fatigue Syndrome (CFS). It took me five years to get better, but I did and I am now fitter than I ever have been.

So what made me ill? I believe it was a combination of several factors:

• For several years before the ME started, my general constitution was poor. I seemed to contract almost every virus doing the rounds, despite a reasonably healthy diet.
• Prior to going to India, I took every recommended vaccination and more, leaving my already low defences further weakened.
• I was away for a year, didn’t eat any meat, I got ill with various stomach problems, and became underweight.
• I have a tendency to bottle up my emotions and do not deal with stress very well. I felt frustrated and directionless and unable to express this to anyone. This I believe to be a crucial factor in weakening my immune system.
• Once ill with CFS I made things very hard for myself – I continued working for two years and trying to behave as if I was completely normal. I didn't accept my condition and my reduced ability to live day to day. It took me a long time to admit to myself and everyone around me I was ill.

What I Tried To Get Better

I tried many therapies: acupuncture and homeopathy didn’t seem to have any effect. Aromatherapy massage was relaxing for the time I was there, but had no lasting benefit. I changed my diet: I cut out wheat, dairy and alcohol. I took supplements. At Barts, I was subscribed anti depressants to improve my sleep. None of these helped me.

After two years of denial I finally admitted to the world I was ill. I had felt such shame, such inadequacy, and was so secretive about my plight. One weekend I visited my parents and broke down. I was inconsolable and couldn’t stop crying. I had never allowed anyone to see me like this. The next day I felt an enormous relief. I see now that this was my first step in the right direction. I stopped work, moved back to my parents’ house. My life was on hold. My sole aim was to get over this awful illness.

A year later I had improved a little: I had more energy and was able to get out occasionally. I was visiting a physiotherapist, who put me on a course of graduated exercise. Despite all this, I was a long way off being able to lead a normal life and still felt terrible for long periods. I became increasingly frustrated, angry one day, silent and morose the next. It must have been difficult for my parents, seeing their son in such a state.

Three and a half years into the illness I started seeing a psychotherapist. I had always scorned the shrink’s couch and what I saw as wallowing in one’s problems, but I felt desperate. It was the best thing I have ever done, illness or no illness. I had a whole hour every week to speak intimately and in confidence about myself, about what I had been through. I told her things I had never told anyone; nothing particularly remarkable, but for me very personal and not easily divulged. I do not believe that friends or family can properly fill the role of a therapist. Of course, it is wonderful to have intimate, meaningful conversations with those closest to you. But, sometimes you need to face up to uncomfortable truths, and personal change does not take place easily.

How I Got Better

As I wrote above, I believe the cause of my illness to be a weakened physical and emotional state, exacerbated by stubborn denial. Dealing with these caused me to gradually improve. Because I bottled my feelings up for so many years, psychotherapy gave the opportunity to express myself and explore my emotional being. I started to really enjoy myself in a way I hadn’t since I was a child, even through the illness. It’s so good to share your feelings and thoughts with others. You just end up going round in circles on your own. Some things go beyond cold logic, and I have found there is a great difference between intellectually knowing a fact, and actually realising something to the core of your being.

I know that some find it offensive, almost an accusation, to be told it is "all in the mind". I agree that it most certainly is not the case. But if you want to get better, one of the most important things of all is to have an open mind. This promotes acceptance, and a willingness to change. It did for me anyhow. Also, I clearly had issues that were perhaps independent of my CFS, which I was able to deal with through my therapy. This in turn meant that all my internal resources could be directed towards healing my chronic fatigue. So, one piece of advice I would give to someone with CFS or any other chronic illness: are there any other parts of your life and well being you can address? Something maybe not so huge and all consuming as the main illness that will give relief. If so, then dealing with that will assist your recovery.

Time also played a part in my rehabilitation. Perhaps things ran their course. I definitely made things worse for myself initially – I am sure I could have got better a lot quicker if I had stopped work straight away, and aired my feelings as I needed. But also I think my system needed to recover from the injections and battering it got whilst travelling. And also, I must say that since I got over my illness, I am a far happier, balanced person than before I got ill, so in a somewhat perverse way you could say my illness benefited me.

During my illness it took me a long time to get organised. For years I almost surrendered myself to the medical (and alternative medicine) professions. This "surrender" is very different to being open minded and accepting. I didn't realise how important it was for me to take control and to be more demanding and questioning of the "experts" that I regularly saw, and often paid good money to see.

Over the last year, I improved markedly. The periods of that “ME feeling” grew shorter and less frequent, and I felt more confidence and robust. I did voluntary work with the Citizens Advice Bureau. I met and fell in love with my partner Gaynor, and now I am working full time and playing in a band. A few months ago I completed a three day bike ride across the South Downs. I was knackered, but so was everyone else.

I can’t s

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Related Websites
Action for ME, a UK charity for CFS, ME sufferers
This site includes a forum and live chat, as well as articles, advice and stories from CFS sufferers.
Blogs, articles and lists of web resources for CFS and Fibromyalgia Resource Directory
Information about CFS and treatment at and

By Atheana, 18-Aug-2008 08:19
Andy, you're an inspiration to us all.
By answerbac, 14-Dec-2008 09:19
you are an inspiration, I wish I could name all the doctors ive seen and cures ive tried I always seem to end up listening to mind doctors. When all else fails I think.
By DILLYDANCER, 22-Dec-2008 22:15
I thought I was going Mad!! Thank you for letting me know that there will be a light at the end of the tunnel!
By dru, 11-Feb-2009 03:40
i say that every day it wont eat me!! i will fight you all the way!!! your story gives hope to those who have lost hope.
By anon, 08-Mar-2009 00:43
just had a relapse you have given me the strengh to carry on cos i know i will get there
By JG, 26-Mar-2009 01:06
Well done. I had it for 11 years. It was the psychotherapy that helped me turn the corner too. I'm completely recovered.
By Andy, 26-Mar-2009 04:43
Glad to hear it JG, thanks for your comment - would you be willing to write your story on this site too so that others can read more about it?
By Susie, 28-Mar-2009 10:06
Andy, you've done an amazing thing by creating this site and telling your story. I absolutely believe that I can beat this illness. Thank you for giving us all hope...
By Ian, 07-Apr-2009 05:35
It was probably the vaccines that destroyed your health.
By Andy, 07-Apr-2009 16:25
I definitely think the vaccinations played a large part. I'm pretty reluctant to have any more that's for sure, especially if they're putting mercury in them
By liz, 24-Apr-2009 01:15
thanks for your honesty and encouragement you're and inspiration. God bless.
By Ela, 08-May-2009 14:34
What an amazing story. I am just beginning to realise that I have this disorder and what little help there is from the general medical profession and how you are left alone to work it all out. Your story has helped me a lot. Keep going!!
By Julia Stentoft, 11-May-2009 12:11
Thank you Andyfor sharing your story in such a beautifully clear and uplifting way. It has given me renewed hope and inspiration.
By trisha, 03-Jun-2009 22:48
As i,m back in relapse it has renewed my faith that i can get better again,, it,s like being a yo-yo dieter i still seek the change oif mind set that will finally turn my life around. Has anybiody any opinions on the lightning process??
By sue, 15-Jun-2009 11:16
i have just been diagnosed today. i am a bit shocked as i have been like this for a while and didnt know anything about CFS. i am a bit weepy but your story has given me hope thank u
By chris, 19-Jun-2009 18:03
wow, the manner in which you became ill is identical to mine. The travelling, weakened immune system, emotional stress. I have improved a lot, and your story inspires me that one day I will be 100%.
By MA, 27-Sep-2009 14:18
As a undiagnosed m.e. sufferer I can not thank you enough for this website. I have gone from totally bed bound to getting up alittle 25mins-4 hours most days (in 13 months of illness) To read stories of others recovering is so inspirational. I don't rely on any medication and thought your story is going to help me the most. It is good for people to add more comments perhaps too, thanks so much.
By AF, 27-Oct-2009 19:49
Andy, I sound very similiar to your case. Just wondering how your sleep improved? did you start to get better natural sleep over time or did it just happen over night?
By Andy, 28-Oct-2009 08:31
My sleep improved gradually and it took quite a while. It didn't always seem like it was getting better either. Having a more positive frame of mind definitely helped. Also when I was able to be a bit more active my sleep improved slowly because I was doing more. It's a balancing act though.
By AF, 28-Oct-2009 18:27
Thanks for the reply. yeah I have found that as well I have only had Post viral fatigue syndrome now for 3.5 months and have been on sleep meds for 2 months. reduced my working hours to 5 a day and seem to be able to manage this but with a little difficulty. thanks again your story in an inspiration. cheers Andrew
By Andy, 02-Nov-2009 17:23
Hey Andy could you contact me on my e mail I have a few questions to ask if that is ok? Cheers
By donmcg, 18-Dec-2009 19:00
Thanks Andy for that open and frank explanation of your experiences of m.e. over the last 5 years. It was though unclear as to what started the process of recovery.Still, I wish you well and that you remain clear from now on. All the best........Don.........
By Anna, 23-Jan-2010 03:51
I have a very similar story to yours. Prolonged stress, illness and an overload of chemicals (both natural and synthetic) on my system is what brought it out in me. I don't think it is co-incidental that you were living in India with all it's curried and spiced food - and that these foods are very high in natural chemicals. I had to go on a very strict low salicylate diet (as well as no processed foods), get rid of all the chemicals in my environment and completely change my attitude to life. I used to get unnecessarily stressed about things and always be trying to do too much, now I have a more positive and slower pace to my life. It took a lot of work but the changes were gradual and manageable over time. Five years on I too have recovered and am living a happy normal life.
By sue, 31-Jan-2010 07:35
but you dont say how you got better
By Andy, 29-Apr-2010 18:02
Hi Don, sorry you didn't find my story completely clear. That could be in part because one can never say with 100% certainty, as life is still going on around you and my recovery wasn't sudden, but a slow, at times imperceptible process. But I would say in broad terms for me, the process of recovery was: acceptance (admission of the problem); change of circumstances (in my case, reducing then stopping work to focus on recovery); understanding my illness (what I did to cause it, at least in part, and how to address that); exploration (trying different therapies); communication and sharing (talking about my problems and releasing pent up feelings and personal issues, plus having a positive attitude - very hard sometimes but very important). I must say that I was lucky to have a lot of support, but I didn't immediately make the most of it. After much stubborn self reliance I started getting help and proper understanding from those around me, and then I met my partner who also helped to transform my life. One other thing though: it's hard to pin point the start of recovery, as in some way for me the start of my recovery was the start of my illness. Maybe that sounds trite, but I'm now much happier and healthier than I was even years before I got "ill".
By tiredchris, 03-May-2010 10:13
I'm glad you got better, but what you've told me wont help me one jot, to get better.
By Jennifer, 11-May-2010 00:23
Well done Andy! I recently went to a presentation by a local counsellor who had cured himself of chronic fatigue syndrome. He puts the sysmptoms of chronic fatigue, ME, fibromyalgia, irritable bowel syndrome and depression and anxiety down to an over-functioning hypothalamus which leasd to over-functioning of other body systems. Honouring the emotions you are feeling when you have symptoms is the key to recovery. It makes sense physiologically and his clients seem to recover, some of them remarkably quickly. You can read about the treatment (and testamonials) here
By Melanie, 14-May-2010 13:53
Hi Andy. Congratulations on your recovery! I have copied your story to my Facebook group CFS/ME RECOVERY STORIES. I hope you approve. (I will of course remove the story if you prefer.) I'd be honoured if you would join the group and perhaps add a comment about how long you have been recovered.
By Jeanette, 02-Sep-2011 06:19
I got CFS in the 80's - the outbreak in Helensburgh Scotland. I spent two years in bed. I have recovered completely and had no relapses at all. I did not do anything to help myself - it just happened naturally! I had coxsackie B and glandular fever. I was visibly ill for the whole time - extreme pallor,swollen glands, red raw throat with blisters and pus in my ears and throat. It was not difficult to get medicos to take me seriously as I looked dreadful and my visitors told me later that they were convinced I was dying - whilst I was convinced I was going to be cured by the next week. I sounded as though I had a permanent bad bout of bronchitis and my face was very swollen and sheet white. I was so tired I could hardly make it to the toilet, just a few steps down the hall. I felt as if my life was over. I think my state of mind had no bearing on the outcome of the illness - the emotions I experienced were predominantly those of anger and disbelief.
By Aymi, 01-Oct-2011 00:46
Thanks for your story. I live in Brighton and after having this for 5 years I'm managing it a lot better now and feel like I will come out the other side like yourself. Thanks again for sharing, its important to someone like me when having some low days.
By june,03-oct-2011, 03-Oct-2011 04:26
Hi,i had Post viral fatigue syndrome some 18/19 years ago.I made a complete recovery and have enjoyed work and family since then.However,i have had a lot of stress for a few years now and i have just started to get over a nasty virus that has lasted for over 2 months.I am now feeling some of the symptoms i had before,very sore feet.Chronic fatigue,not sleeping etc.Is it possible for it to return after so long?
By BCB, 24-Dec-2011 16:25
June, I had M.E in 2002. It was very severe, however, I spontaneously recovered after about 12 months. My children were younger then and I only worked part time. I have not been ill very often since that terrible period and managed to get through stressful situations unscathed, ie passed my driving test, got married and have a very demanding, stressful full time job. However, this year I have suffered considerable persistent stress due to the nature of my job and the economic downturn, I have also moved house again. I had a virus at the end of August this year and tried to carry on working. I could not believe it when I started to encounter symptoms which I previously suffered from in 2002. The symptoms were milder than before until my son was admitted to hospital with a serious illness, this completely floored me and the relapse became fully blown. I have now been off work since September, I have started to work from home 4 hours a day since the beginning of December. I started to suffer from panic attacks and worrying myself sick as I remember how ill I had been before. I hate reading all the stories about how long everyone takes to recover from this terrible illness. My own personal belief is the quickest way to recover from this is to accept the condition (not resign yourself to it) avoid stress as much as you can and push yourself even when the symptoms seem worse the next day. Stress was most definitely the main contributor to my relapse. I am hoping to return to work ASAP but have advised my employers I will not be returning to the same capacity of work which I have been trying to juggle. I am also a natural worrier and I have spoken to my GP about cognitive therapy, I think most people who claim to have fatigue are or have been suffering from considerable stress. Do not despair - most people that I know who have relapsed with ME recover quite quickly. You may never suffer from it again. Hope you get better soon and keep thinking positive - i
By Gavin, 21-Jan-2012 09:26
Hi, im a fellow sufferer that started with a sore throat that never went away, it developed into an acid reflux that happened every morning and sticky mucus that would stick to the back of my throat all day. I had brain fog, bad memory, muscle cramps and couldnt get enough sleep. I would wake up after long periods of rest and not feel replenished! Id sleep tilll i started work and sleep as soon as i got home! The worst part was chronic headaches that attacked most days that caused a light sensitivity that were unbearable. Ive been tested for most things, strep throat, EBV,food allergy tests, all bloods tests, urine test, sleep clinic tests. All test results came back normal. Ive tried all sorts of vitamins, probiotics, a candida diet, antidepressants. Things got too much and nothing helped. My partner left me two years in, im not surprised everyone thought it was in my head and didn't take it seriously, which made the whole experience much worse. Over the past few years i ve been as healthy as i could possibly be and it made no difference so im starting to believe it to be a problem stemming from the mind, not the body. Its not impossible, we know there is a link between them. Toxic thoughts that were perhaps stemmed from an initial trigger such as a virus or illness. The brain uses anchored associations and goes into autopilot without your control. I believe toxic thoughts to be…..'ill never get better', 'no one believes me', 'i feel so weak', 'everyone else are enjoying there lives', im not in control', 'i have to go to work but have no energy,' 'what must people think of me,' Repetition of toxic thoughts is what makes them stronger! So the pattern begins…….you start to feel this way daily, your toxic thoughts create toxic hormones, and your body starts to become ill. If you need to take time off work... do it!, if you need to admit your down go to the doctors and seek antidepressants or therapy, read a self help book or any book for that matter. Eat at the right
By Will, 01-Mar-2012 20:39
I got CFS march 2011, I use to work 80 hours a week. I was extremely strong 29 years old guy. I never use to wear jacket in negative temperature. I never use to catch flue, or virus. All those thing came to end one day. I went to my morning job (Auto mechanic), i lifted heavy wheels and overdid the weight. Than i got off at 3pm. at 4pm i went to my evening job (security). My girl friend had terrible flue, she came to meet me at work and i kissed her. i went to bed at 1 am. Next morning i was having flue like symptoms along extreme joint & muscles pain. my neck was stiff, muscles pain head to toe. swollen glands, but no fever. I ran to dozens of doctors. All the tests (STD) and others came normal. Doctor told me that i am perfectly healthy guy. I went to another doctor who asked me to get my vitamin D level checked. My vitamin "D" level was low. I started taking 4000 IU a day. I was still feeling very tired. After a year I went to one of the doctor's i had known for a years. He was a good listener, she told me that i am suffering with fibromayalgia /CFS. He advised me to start swimming or gradually start weight lifting. I dont know how to swim, but i started weight lifting gradually. Now i am feeling awesome. I think i am 90% recovered. I just have mild pain in the muscles which i hope will go away. i few months to years. IT ALL DEPENDS ON YOUR WILL POWER. DON'T BE DEPRESSED JUST DO REGULAR EXERCISE AND GRADUALLY INCREASE THE LIMIT. I PROMISE THAT YOU WILL FEEL HELL LOT OF DIFFERENCE. DON'T FOCUS TOO MUCH ON YOUR SYMPTOMS OR READ STUPID THINGS ON INTERNET AND YOU WILL BE FINE.... GOOD LUCK!!!!!!!!!!!
By Chris Creaser - Hull, 08-Mar-2012 12:14
I've Suffered HELL'S FLAMES for the last 25 YEARS,with Fibromyalgia / Chronic Fatigue Syndrome / Myofascial Pain Syndrome. GETTING BETTER IS A MATTER OF LUCK ! - IF YOU'RE MEANT TO GET BETTER YOU WILL, IF YOU ARN'T YOU WONT !!! Period !
By Your Conscience, 25-Mar-2012 12:57
ME is not CFS. You should all be wary of using these, and related terms, interchangeably.
By BCB, 25-Mar-2012 13:26
Anyone tried reverse therapy?. I have had four sessions. It is based on reversing the way you think about the environment around you and working with the symptoms instead of trying to fight them or ignore them. You are taught that the symptoms are your friends and that they are there to protect you. If I tell my therapist that I was out walking and my muscles were aching she will ask me what I was thinking about while I'm walking, she said that bodymind and headmind are not working together the way they should be. It's all based on Hypothalmus overworking which effects other glands,ie, piturity and adrenal glands. These release chemicals into the body which cause the symptoms. I have been getting better, but believe i am holding my recovery back as i am trying too hard to get well so that i can get back to work (been off for 7 months), i have a lot of issues, anxiety, work related stress, now the addition of finance problems not being at work. I'll keep posting as i make progress. Definetley need to change the way i think about everything, get very anxious and stressed easily, also a perfectionist, work too hard. I will get better though i have before, had similar problem in 2002, but feel reverse therapy is onto something here. Watch this space!!!
By Meja, 07-Jun-2012 04:32
I found a cure!! Easy, simple in a healthy way and would love to share this revolution so everybody can heal. Who is interested? No money interest but would like to follow your recovering for personal orientated studies as i found it.
By Angela, 07-Jun-2012 10:53
MEJA MEJA MEJA MEJA I would be very interested I have had CFS for almost 28 years.what would be involved.
By Angela , 07-Jun-2012 10:55
By Lucy, 16-Jun-2012 08:15
Thankyou so much for this, it has really helped me and made me see I can recover too.
By Prakash, 03-Jul-2012 01:44
Hi, I am 52 , 173 cm and about 170 lbs . About 5 months back my B12 level was very low but apparently I did not have any symtoms of vitamin B12 deficiency except pain in wrist of my left hand. I had about 20 shots since then apart from oral medication and everything was well with me and till 15 days back . I was using treadmill almost 5 times in a week for 25 minutes at speed of 6/7 without any problem Then on sunday 17th June12 , while going out of home early morning , i suddenly felt weakness & extreme fatigue after just walking few yards but without any chest pain.The day was normal after that but it occurred back in the night when I was walking back home. Now my life has changed , i went to treadmill on 18th June and found that after hardly 4-5 minutes i could not pull on anymore and it is same problem of extreme fatigue , infact i have not gone for my treadmill after that fearing that i will be exhausted again. The doctor advised me and I got my B12 and vitamin D tested and as per report , my B12 is quite high now but Vitamin D level is only 23. As per neurophysician, I have chronic fatigue syndrome, he has prescribed some medicines for vitamin D and B12, Calcium , carol 60K9 (once a week ) and Arcalion for 3 weeks. ANY COMMENTS
By Freya, 29-Jul-2012 03:19
Thankyou for sharing. I too have been diagnosed with CFS after 5 years of similar symtoms. I don't feel my life is stressful, and like many have tried most things with very change. If I thought counseling would help, I would. Have you ever heard of CFS bring cyclic? For example being well for 6-8 weeks then bed ridden with the CFS full blown, taking 2 weeks to recover then ok. Then 6 weeks go by and it repeats itself ?thanks again . Good health to all of you.
By Cedric, 14-Aug-2012 12:44
During the 3-5 year recovery period is there an up and down of severity of symptoms? For example, there are times when you feel worse only to come back and improve overall?
By Alex, 18-Aug-2012 16:31
Thank you for sharing. I was in a very low mood tonight after a bad relapse and needed to read a good story. Congratulations on your recovery. I have been suffering from ME/CSF since 2007. I got a nasty bout of salmonella in Egypt and felt horribly for two weeks with the usual symptoms of salmonella. Got antybiotics on site and then when I returned to the UK. I started losing weight and then after a couple of weeks I got flu like sypmtoms....well it was the beginning of the end. All the symptoms you all know made me sick and unable to work. I was diagnosed after 4 months of post viral fatigue and I thought it was a joke: I tried a staggered return to work after 8 months of sick leave ( so 12 months after it all started) and it did not work out even with few hours a week, therefore I had to leave my job ( which I adored). I also separated and now I am divorced as my ex- husband thought I was lazy and depressed and I had invented this illness in order not to work...I was too weak (and mostly bedbound) in the first 18 months to go to a psychologist and I really did not see the need because it is a physical illness but as soon as I felt a bit better ( after 6 months of extremely high doses of Coenzyme Q10 200mg three times a day, that was prescribed by a migraine specialist) I eventually did. As you say the key to start recovery ( or anyway to be more content within the limits of the illness )is acceptance and I started feeling better when I started not to feel constantly guilty for not working for not being able to take my son to the park or play football with him...Since then I felt more accepting of myself for the first time : not as a high achiever but as someone who has no conrol on was hard and it still is sometimes.... A book that also helped me a lot is "full catastrophy living by Jon Kabatt-Zinn who introduced me to relaxation techniques and light yoga. Mr KZ helps people with chronic conditions to take charge of their illness and start the
By Alex.1, 18-Aug-2012 16:35
Mr KZ helps people with chronic conditions to take charge of their illness and start the recovery process.I have also tried a lot of alternative therapies and in a way they have all helped a bit especially with the constant brain fog, I did acupuncture, mediation homeopathy and CBT. After over 5 years now I work 2 hours a week ( private tutoring when I can ) and still need help around the house. When I am fine I can have two perfectly normal days without brain fog, I can write emails, go shopping, help my child with homework and then if I do not pace because I am so excited I am well, I will experience two horrible days...if I pace I can have even a full week with only minor symptoms. I sometimes find that if I had not had this illness I would be so successful or just 'perfect" as I was ...but really it has helped me understand that there are people who still love you anyway and that I have no control or a very limited control on my life . The most difficult part for me to accept about all this is still the look of some "friends' or family. I hope this nightmare will finish one day and I will be able to fulfil my dream to trek in Peru and reach Machu Picciu. I will let you know if I do! I wish all of you a complete recovery.
By BullSHYT, 01-Sep-2012 22:56
I don't believe you had CFS or what ever.. I am suffering 6 years.. I have tried about everything.. BLAH BLAH BLAH> I WISH I WERE DEAD
By BullSHYT, 01-Sep-2012 22:59
By Annmarie, 03-Oct-2012 08:27
Please don't let it beat you. I had it once before in the early 1990's, it lasted 12 months. There were days I felt so ill I did'nt think I would survive the day. I went to a naturopath in Troon and because of his positive attitude that I would recover plus some remedies, I did. Now it looks as if I might have it again and yes I could easily give up. I live alone and was diagnosed with Parkinsons Disease a couple of years ago. But I am fighting it, it's not easy and trying to be positive is hard at times but that is the most important thing. Your state of mind. Vitamins and minerals, evening primrose, co-Q-10, garlic and Echinacea. You can do it. Don't let this beat you. Annmarie
By Terry, 15-Oct-2012 07:37
I haven't been diagnosed with CFS and am never sure if I have it. I got ill a year ago after having 6 months of nausea. The first thing that happened to me was that I felt like death one day and my legs just wouldn't walk! scared the life out of me. Anyway to make a long story short, I have been going to the GP and hospital on and off for the past 18 months had all the blood tests and as everyone else seems to get told, i'm fit and healthy!!! The trouble is my symptoms do not seem to be like everyones elses or maybe they are and I haven't read the right accounts. What I don't suffer from is 'brain fog' thank goodness, I do sleep at night too albeit I seem to wake up at around 4.30 quite often fully awake. I'm not tired as in sleepy during the day either. BUT..what I do have is about a 10th of the strength I used to have to do stuff and when I do try and push myself on good days I get very sickly because my muscles ache so much and I feel like someone has attacked me with a cricket bat, normally takes me around 3 days to recover enough to 'contemplate' starting doing physical jobs around the house again (I'm trying to do up my house-taking forever because of this bloody illness). At one stage when I first got ill, walking was hard to do for long distances, now I can walk for about 30 minutes. I do also get very twitchy if i over do it, seems my twitches attack my back, my eye and oddly really twitches my hand, you can see the skin moving! Do I have CFS i still don't know, but what ever it is I do have, its a bloody battle somedays to try and be positive and like others on the site I desperately want my 'real' life back and am determined to bloody get it back.
By ush, 15-Oct-2012 21:48
Hi every one,i got electrocuted,and since then i have been having all this symtoms for like 7months or so now .is it possible that am suffering from 28yrs newly married and can't even have sex with my wife
By cheryl, 09-Nov-2012 19:06
I have had chronich fatigue syndrome and fybromyalgia for most of my life.i just started getting acupuncture.I have been getting it for about 2 weeks now.I feel so much better.The acupuncture isn't a quick fix it's prolly goin gto take several months for me to a year for me to get well because I have had it for about 20 years.But I know I will get well I feel so much better.I have been getting up at 8 in the mourning the past 3 days!Please if you have this illness try acupuncture.I am going to start to get mine at a clinic becasue it is much cheaper.If you don't have the money go to a clinic it's really cheap.Just research your options before you go to one,make sure you find the best price because it can be real exspensive if your not working.I am going to pay only $20 a session.I am just so happy because I feel I am finally going to start living.I know acupunture may not be for everyone but I do know that most people get well from it.You just have to give it a chance.Some people respond slower to it then others.I felt a diffrance after the second may feel a littler better each time you get the acupuncture.But it won't make you well over night.It depends on how bad your chronich fatigue is.Mine is real bad but it's starting to get alot better!
By Dee, , 22-Nov-2012 09:40
Hi, I'am 13yrs old + I was diagnosed with CFS this summer. Until now i felt alone because I have never heard of CFS before + felt like I was letting everyone down but I would just like to say thank you ever so much because You have gave Me hope for future X
By Adam, 26-Nov-2012 21:17
Dee, the good news for you is that nearly all kids (those under 18) fully recover from CFS. Might take some time but youll get there.
By Satish, 27-Dec-2012 10:29
I am recently noticing a lot of fatigue. I have it for a month then it goes off and again comes back. I don't have joint pain or fever or sore throat. Can this be CFS?
By Maggie, 02-Jan-2013 15:28
Terry-you do have cfs-not everyone has the same symptoms-I have similar symptoms to you and was diagnosed by my doctor. I have had it 8 months and am not fully recovered but have improved. Find a GP who understands and get referred. Also, follow advice on nutrition, sleep hygiene etc from sites like and action on me. Take care
By emma, 21-Jan-2013 10:39
I love this story. I think its so important that people realise that the healing can only start when they stop working or pushing themselves to do too much. Making sure people around you have the full information about the illness will not only help them it will help you. I've lived with ME for just over 3 years now, the first I didn't get any better but after that I improved slowly. In september 2012 I started seeing a herbalist that specialises in ME (Jo Dunbar, uk)who I was told about by someone she helped cure of ME. Since september I've improved fast. I feel so much better, although I still have symptoms they just arent as bad. It is 100% possible to recover - it just needs time and rest. There is also a good recovery programme which i did for 7 months - the gupta programme it helped a lot.
By Clare T, 31-Jan-2013 09:52
Hello Andy, thank you for sharing the story of your recovery. I'm happy you are better now. I've had symptoms of CFS for a few years. I think my doctors don't really like to diagnose CFS, not sure that they believe in it.. One doctor suggested my problem might be post-viral fatigue, but in a very vague way. And then an alternative health practitioner said I definitely have CFS. The other doctors I've seen just shrug their shoulders and say they've done the blood tests, and can't do any more. So I've decided to help myself and do some light exercise (swimming), and although my muscles are aching today, it makes me feel great for a while. I also try to eat healthily, (no wheat or dairy), but I'm not sure how much this is helping so far. I might also explore your idea of psychotherapy. I always hold things in, and have always done this as that's how I was brought up. We didn't talk about things. And I feel like it needs to all "come out" at some point. I'm glad that has helped you, and I'm glad to have come across this page and the idea of doing this. I can understand that it might help, and actually the same practitioner who thought I had CFS also said that she detected a lot of anger in me, and anger can affect healing... Good luck for the future.
By Beatriz R, 06-Feb-2013 09:15
I think that your story will give everyone on here some hope for their future, including me. Today has been a bad day for me- fatigue, sore neck glands, numbness in arms, hands and legs. I told my husband that I don't know how I can carry on like this (me being selfish). I was given the diagnoses of post viral fatigue several years ago, but I know that it is more than this due to the amount of suffering I encounter most days. I have not worked for 7 months now, I am a swimming coach and loved my work, life and family but Feb 2012 I really started to feel bad and found that I couldn't manage my symptoms anymore (I would get by with working a couple of hours and then resting) I used to work through the constant feeling of having the flu the aching limbs, sore throats and viral headaches that went along with it. I knew that I was getting worse but kept on crawling through my days and then I collapsed at work one day and have never been able to return. I have read that B12 injections help with the fatigue but my GP refuses to give me them so now instead of endless amounts of vitamiins I have invested in a juice machine and will drink as much green juice as I can tolerate to try and help my immune system get stronger. I have tried the graded exercises but always feel much worse after. I look forward to the days when all this is a distant memory and intend to give my time helping other sufferers. Thank you
By Seb Ward, 18-Feb-2013 06:43
I got over me, about 5 years ago it took a good year, I got help through Reverse Therapy listening to my emotions and to enjoy life. Thinking positive was the main key to my recovery. On 27 of December 2012 I woke up with this awful dizzines a symptom I had with me, its now turned into the nasty Fatigue I suffered with all those years ago. Reverse therapy taught me not to sit on my ass all day and not to pace myself,but to do whatever I want, as you become trapped in a circle and worry your not going to feel well the next day etc. I'm writing this feeling dizzy and fatigued, enjoying what I love the most which is walking, infact I'm nearly at the top of Cader Idris a mountain in North Wales. I will let you know on here when I'm well again!
By Sam, 21-Feb-2013 15:43
Thank you Andy and to all who commented. I had had many travels, vaccinations and been An A-type workaholic. I had Viral meningitis 2.5 years ago and spent 5 days in hospital after a trip to Peru, preceeded by a vaccine booster. After 7 months of post viral fatigue I managed to hold down a contract for 9 months by working my rear off. I then got a new job worked 10-15 hour days and bang back in hospital with another virus. After a few months I couldn't work. Once a little better did I rest? No I went to China. I mostly slept but then hauled myself around the 'Avatar' mountains for 4 days. That was 5 months ago and I've been on a steady decline since. Im terrified that it will take years to get better. I'm now house bound but hypnotherapy and CBT give me hope. CBT (Cognitive Behavioural Therapy) and hypnotherapy work for everyone not just the depressed, indeed most life coaches use the same methods. If you find you are stuck with the same thoughts or worries circling your mind you may find them helpful. I get through the days by making the one thing I do if out of bed be having a candle lit bubble bath. Really really helps!
By Goldilocks, 24-Feb-2013 14:30
I came down with CFS hard in the 80s I bounced back later I relapsed. On one occasion I had been in remission so long I actually forgot. I started going to the gym and lifting weights, was getting in great shape and suddenly it hit me and it took another year to recover. While I identify with everything said there is a part of me that thinks "be can fool you. Pacing is everything." While the biking is admirable it really is over and beyond what most people do and it can set you back..not while you are doing it but not long after. I sincerely hope you can stay in remission. I am 63 and I am in my 4th relapse and it is so much harder now that I am older.
By Victria , 06-Mar-2013 01:02
My daughter has had ME ate about 4 years. She had a great social and school life. Everyone of her peers have moved on without her. She is totally isolated. She doesn't have the health to go out and make new friends and anyway I think has lost her confidence to do so even if she were well enough. She no longer uses social media I suspect seeing others living full lives may have made her feel more isolated. Any ideas? Also she won't seek any emotional support as she dipped her toes into it in the early days and sais it didnt help and would be stressful for her. I think she needs it but I can't make her do anything ...and I may be wrong...maybe it won't help. For the first couple of years she followed precisely all of the medical got her I understand why she thinks nothing will help. But I find it hard to sit back and do nothing and see her so lonely and ill. Any ideas about how I can help her or any suggestions I can pass on would be much appreciated. Thank you.
By Debbie, 09-Mar-2013 04:34
My son has ME/CFS and has gone from very healthy and happy to (understandably) depressed. He is in his teens and I can't persuade him to seek psychological support he says he is depressed because he has ME/CFS when he is cured of that he will not be depressed. He is right I know on one level but I think depression may block the road to recovery. Andy - what made you change your mind and seek that kind of support? Also - thanks for the site.
By Debbie, 10-Mar-2013 03:06
Dee have you heard of the Tymes Trust? They are a charity set up to support younger people with ME. They have a lot of helpful information including information that you can print off to give to friends and teachers to explain your illness. My son became ill when he was more or less your age. I came across the site quite a while after he became ill. I found it helpful for my own understanding and it really seemed to help his then teachers understand better what he was facing. You need to open up documents that there are links to..otherwise at first glance the site might not look that useful. Good luck.
By Lu, 21-Mar-2013 23:31
Hi all. Thanks Andy for your site and for everyone that has written. It is helpful to know that we are not alone in this. I am 29 years old, and have suffered from fatigue, chest pain, racing heart (145-160 when brushing teeth to give you an idea), low blood pressure (75/40), muscle and joint pain, brain fog,slow cognitive processing and headaches to name but a few symptoms. Despite these physical symptoms, when I went to a psychologist and then psychiatrist I was told that what I really had was just major depression. They treated me for this for more than 6 years - never really listening to me about the physical symptoms that I was experiencing - which at the time I just described as a sore body,chest pains and